I love it when Nancy laughs at us.  She has an eye-gaze computer that allows her to talk.  It is really a cool invention.  If we act silly or something is funny on TV,  Nancy will say, "Ha Ha."  No, it's not the same as hearing her voice, but it's nice to know what she is thinking.  I like the fact that it allows us the ability to be able to communicate with her.

     Nancy is allowed to eat some things.  She has had a milkshake, some ice-cream, a little sprite, and some mashed potatoes. No, she does not have big quantities, but just enough to make her happy.  When she enjoys these things, it brings a big smile to her face and it just warms my heart.  I like the fact that every once in a while, she can have something that she is craving.

     ALS is a terrible disease and to let her have a little bit of happiness, a little bit of pleasure for herself, is definitely well deserved! 

   

     My sweet sister was diagnosed with ALS on June 4, 2019. This news was devastating to our family. It all seemed like a bad dream, but unfortunately, it was our new reality now. It's bad enough to hear that someone you love has ALS, but it's even worse watching them go through it. I am going to share my thoughts and feelings with you as we go through this new journey. 
     I wish there was a cure for this horrible disease.  My sister was a very independent person and this disease has taken her independence from her.  Just imagine that you can no longer talk, walk, bath yourself, go to the restroom, fix your hair, put on your make-up, etc.  This is her new reality and it's not fair.  It makes you realize how blessed you are and all the things that we take for granted.  We really have no room to complain.
     Her best friend, Laura, and I take care of Nancy and we are happy to do so.  Laura misses her best friend and I miss my sister.  Yes, she is still alive, but we can't do the things with her that we use to.  We take it one day at a time and we enjoy her and the memories that we share now.  This is our new journey now.